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Info about Cystic Fibrosis...

 

 Cystic Fibrosis (CF) is the most common fatal genetic disease in the United States today. Scientists funded by the Cystic Fibrosis Foundation (CFF), however, are quickly bringing us closer to a cure. The CFF has a web site that can give you more information. www.cff.org

 CF affects approximately 30,000 children and young adults. The median age of survival, for a person born today with CF, is 36.5 years.

 CF causes the body to produce an abnormally thick, sticky mucus. This abnormal mucus clogs the lungs and leads to fatal infections. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestine to digest food.

 The Camp Funshine Foundation, Inc. was formed in 1995 by a group of CF patients and their families. It is an independent, nonprofit, volunteer organization dedicated to providing a week long summer camp for children with CF.

 Cystic-L is a place were CF patients, and families, can share information and experiences, as well as gather information about CF and ways to deal with a lifestyle including Cystic Fibrosis. You can reach out and contact others. Cystic-L

 Cystic Fibrosis Resource Centre (http://www.cysticfibrosis.co.uk) - This UK web site has been produced by Solvay Healthcare Ltd., and is designed to offer advice and guidance to cystic fibrosis patients, parents, doctors and other carers. Resources and information are provided which will hopefully help in resolving problems and coping better with cystic fibrosis on a daily basis. The site includes an email Newsletter which contains new research, hyperlinks and news about CF. Cystic Fibrosis Resource Centre

 

How much do you know about CF?

The American Association for Respiratory Care has a quiz for you.

To test yourself, click here. CF Quiz.